A Visit with Katie

Since Cannon was diagnosed, I have been fortunate enough to have a wonderful support group through a Menkes Moms facebook page. Katie has been a dear friend that knows first hand the heart break of Menkes. She lost her beautiful angel when he was only 19 months old- the same age Cannon is now. His name is James and he would be in 3rd grade this year- the same age Ethan is now. She lives in Oregon so we were able to stop on our way home from our BYU trip and spend the day with them. I have met her before but this is the first time she and Cannon have met. This is actually the first time she has met another Menkes boy. It was such a special day and I am so thankful for her love and friendship. Katie's mom lost a baby at 6 months old, to Menkes, and she was able to be there too. This family is amazing and have so much love to give. Thank you for opening your homes and your hearts to us.My sweet friend Katie.

These girls just got along like cousins. They had a great time. Obviously we don't know if they carry the Menkes gene, but when I look at these three beautiful girls, I can't help but hope their future will have more promise for a cure before they have babies.

We all know Ethan is more than happy to have a friend that will play football with him.