Our appointments included a follow up with the Biochemical Geneticist. At that appointment we were told that we are still waiting another couple of weeks to get the complete genetic testing, which we already knew. Cannon's weight has dropped to the 3rd percentile so we had to meet with a nutritionist. In order for Cannon to safely begin solid foods, they ordered a swallow study which we are just waiting to get the call back from Yakima since we can do it locally (only 40 minute drive - as opposed to 3 hours). We then met with Neurodevelopment. They agreed that he has not learned any new skills since our last visit, 2 months ago. We talked about some muscle spams, or twitching, that we have noticed Cannon doing lately. We aren't sure if they are just Cannon trying to get his muscles to move or if it could be something more significant. Together, with the doctors, we decided to try and schedule an EEG to see if there is any seizure activity (please NO!). The Neuro dept. told us they would call us when they could get us in for the EEG. As Kent and I were taking Cannon back down to Ophthalmology, the Neuro nurse came running downstairs to find us to let us know EEG just had a cancellation and they could see Cannon right now! I am aware of the blessings we are receiving, and I am thankful that we were able to get the EEG done while we were already in Seattle. We will know results within the week. While he was hooked up, he did the twitching that Kent and I were talking about, so if it doesn't come up on the test then we are in the clear. Keep your fingers crossed!! This is how many wires have to be attached to little Bubba's head.
He was annoyed that she kept sticking things to his head.
Now, he is a little more than annoyed. ;)
After wrapping his entire head in gauze, they let me hold him while the test was running. He calmed right down and fell asleep. Here he is, just waking up. Sweet little boy.
Now, he is a little more than annoyed. ;)
7 comments:
He is so handsome! What a champion to endure so much! Love you and your family!!
I seriously have the hardest time seeing these pictures with so many hurtful things little Cannon has to go through--but, I know how it pains you and Kent, too, to have to watch it all. We all continue to pray for your family every single prayer, every single day. We love you all!
Seeing these pictures of Cannon and reading what you all are going through, I can only imagine how difficult it is for the both of you. I know I have said this before, but he is such a beautiful babe...so precious. I know you make him feel safe while he is going through these procedures. I have been meaning to tell you that I think you are a wonderful writer. I enjoy reading all your posts. You have a beautiful way of expressing yourself.
This little boy warms my heart! I think he has touched everyone who has read his story....what an angel!! We pray for him daily. Love you guys!
His head all wrapped in gauze reminds me of myself 11 years ago. I had to have a three-day EEG test (prior to brain surgery).. and my head looked like that only with a big box on top in addition to all the wires. I looked like a conehead. Hang in there. He's a fighter and you're doing all that you can. I pray that he will see it through... and so will you.
Poor little guy... what a long week for you all. Jane continues to remember Baby Cannon in every single prayer that she says... and doesn't hesitate to interrupt the rest of us to remind us when we are saying ours. We love you guys.
Keep it up! The Lord is so involved with your life. You are able to handle it all...I know it! You guys are great. Thanks for taking Nicole's family pictures this weekend. You did an awesome job!
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