Menkes Men

I have had the honor of getting to know some amazing little men through their mother's stories, and modern technology. I am learning more about them each personally and I am compelled to make everyone I know aware of this disease so they can make everyone they know aware of this disease. Future doctors and nurses will recognize characteristics of this disease and a life will be spared from this heartache. That is my prayer. I have added pictures of a few little fighters, along with a sentence or two from their mommies.

Max was diagnosed on May 20, 2010 at the Alberta Childrens Hospital

He will be 1 year old on November 17. He is our little hero, and no matter how rough he feels, he always has a smile for his big brother!

- Canada

Skyler was born December 22nd, 2009. He was diagnosed at at 10 months old. What I love about him most is his smile and his laugh. Even through it all, he can give a big smile and make both of us forget that he has this awful disease.

Adrian was born 11/21/08 and passed on 8/30/09 at only 9 1/2 months old. He was diagnosed at 3 1/2 months old with Classic Menkes Syndrome. He loved to snuggle in front of the fireplace with me and watch movies. When he was feeling well he loved to eat sweet potatoes and carrots.- Texas

Hayden was diagnosed when he was 11 months old in Oct. of 2009. He is now 1 week off his 2nd Birthday and the most special thing about my little angel is 'he was send to us to teach us about the world and to teach me about me' ' he is so strong and an amazing character' - Australia

Miles was diagnosed on December 23rd of 2009 at 7 months of age. He is such a little trooper, he has even smiled during his copper injections. Miles has 2 older sisters and a little baby sister too. - Australia

Miles and HaydenBaker just turned 3 on Sept 24th. He was diagnosed when he was 19 months old. My favorite thing about him is his smile and laugh. He really is the sweetest boy in the world and sometimes I feel bad saying or feeling that b/c I have 4 boys but Baker truly is an angel, I just adore every bit of him and love him to absolute pieces. He makes me feel better every time I am down. - Washington State

Lance March 9, 2000- Dec 28, 2006 His favorite thing was his mommy! He was a very happy child who loved his little sister. - Maryland

Jordan was 22 months old when diagnosed with menkes disease. We decided to start him on the copper histidine injections knowing it probably wouldnt help that much. but i think thats the best thing weve done for him. and the reason why he is still here with us now.

he will be 12 years old in january. we are blessed for every day he is here with us.

a favorite thing about him.... theres soooo many lol. His smile, his laugh, how strong and brave he is. He can light up the room just by smiling :) He's been through sooo much over the years and yet still comes out of it smiling. He is the bravest little boy I know. His favorite things are music, and lights. and when his little brother plays with him. - Michigan

Blaine was diagnoses prenatally and he started copper treatments with Dr. Kaler when he was only 3 days old. He just turned 15- Rhode Island