Beluga

The most exciting this about our trip to Seattle this time was that we missed the pass closing by 2 minutes. They are doing rock blasting so they close the pass for an hour at a time and we missed it only by a few cars. Cannon wasn't complaining when he was able to get out and sit in the front seat with daddy for awhile.

He did, however, start complaining at dinner. Kent and I decided to try and make it a nice little night out at the Cheesecake Factory but Cannon screamed the whole time and we finally had to box up our food to take back to the hotel. Last time we were in Seattle (just a couple days earlier) we planned on going to the Cheesecake Factory but Cannon cried so much we never even made it, so I guess we are making progress. I know I'm going to wish I had my good camera for these trips, but there is already so much to pack and carry that the cell phone pictures will have to do. This is the one moment at dinner that Cannon wasn't screaming.

At our first appointment, the Neurologist reviewed the EEG with us, telling us that although his brain is having seizures equal to that of a severe epileptic patient, he is not having clinical seizures. Clinical seizures basically means his body is not showing us what is going on in his brain. We discussed the options of anti-seizure medication, but with one of the major side effects being irritability, we decided to hold off since Cannon is already very irritable.

While we were in Seattle, we decided to also meet with the Urologist to check Cannon's bladder and kidneys since a lot of Menkes boys have UTI problems. When we went in for Cannon to get an ultrasound, I said to the technician, "We can't wait to see if he's having a boy or girl!" She didn't think it was that funny. I am pretty sure Kent was embarrassed to be married to me. When we were leaving she said, "Have a good day." and Kent responded with, "Good!" Now Kent and I both looked very socially awkward and very much made for each other. My phone died so we have some pictures on his phone that I will upload soon.

While we are spending so much time in the hospital, constantly thinking about what our future holds, I think it makes Kent and I mad. Not mad in the "Why us? Why Cannon? Why? Why?" mad sort of way, but more in the "Alice? Have I Gone Mad? Mad-Hatter." sort-of-way.

In the elevator, they have it look like you are in a submarine with sea animals through the painted on windows. I made a funny face and Kent said I had the same expression as the animal behind me. We named the animal Beluga. Beluga has an expression as if to say, "I'm sorry about the bad news you just got. Wish I could help. I really can't help but I am sorry anyhow."

Now when things aren't so great, and even when they are, we just look at each and say,"Beluga," (in the same tone that Taco Bell says 'Chalupa' on their commercials- Cha-Luuuu-Pah, so here it would be Buh-luuuuuu-gah). Then we also shrug our shoulders at the same time if to say, "What else can we do?" I'm glad I have Kent to go through all of this with. He is level-headed but dorky and he's just what I need! I realize as in posting this, you will see how tired I am - and ridiculous- but ... "Buh-luuu-gah."