Consider Yourself Hugged

If we have to be in the hospital, I'm glad it is close to home. It has made such a difference from how Kent and I felt when Cannon was put in the hospital in Maryland. In Maryland, we felt so isolated and locked up there. Here, we are able to be visited by our dear friends that love us so much. We have had dinner brought into our home every day. We are thankful that Laura was here to help us as Kent was recovering from the surgery he had last week. If she wasn't in town when all of this transpired, the stress level would have been through the roof. We are thankful for her sacrifice and hard work. She keeps everything going as I am at the hospital 22 out the 24 hours in each day. I am so thankful for the love and support we have felt from everyone through this. We have also had an outpouring of phone calls, texts and emails. I just hope I can show that appreciation I have to somehow let you all know how much I feel of your love. I couldn't do it without it.

I came home from the hospital this morning to shower and get Ella ready for school. While I was there, these beautiful flowers were delivered to my doorstep. They were not signed, but I want whoever it is that sent them to know how HAPPY it made me to know that I am being thought of. I thank you for that and definitely consider myself hugged!!
Through this journey we have met Cannon's kindred spirit friend, Max, who lives in Canada, also diagnosed with Menkes. Cannon and Max have had their share of hospital visits in the last couple months and they always make sure to send each other balloons and a Teddy "Bear" hug. I am so thankful for these gestures that mean so much. I hate Menkes and I wish it did not exist, but since it does and others have gone through this too, I am thankful for the connection I have with other Menkes families. I can call on them for feedback, information, strength, love and understanding at ANY time of the day. I know that they are a blessing in my life given to me directly from my loving Father in Heaven.